Ethical issues

The European concept of Responsible Research and Innovation (RRI) means more than dealing with the ethical issues arising within research itself - it involves considering the wider dimensions of science and innovation already in basic research and technological development. To follow RRI strategy LarSyS researchers carry out research to the highest international and ethical standards, promote team spirit and collaborative work, respect all patient and individuals confidentiality and rights, promote the translation of research findings to the public, recognize the Institute's social responsibility through its outreach activities, promote a culture of mutual respect and equal opportunity within the Institute and, achieve high standards of corporate governance.

In this proposal whenever human related information and/or material are studied, only samples that had permission from the Medical Ethical Review Board will be used. Patient's information or materials will never be used for commercial purposes. Access to these samples is only allowed for those individuals that have the proper authorization. Patient information and materials will not be sent to other partners. Databases will be preferentially stored on the in the local medical institutions and only authorized personnel have access. If we intend to concentrate data in one big database located at one of the institutes of the LARSys it will be anonymized/non-traceable according to "National laws for medical-scientific research on human subjects" and "The declaration of Helsinki" concerning the legal rights of human subjects.

As our research may include working with human personal data and materials and as we aim to produce biotechnological inventions that may impact lifestyle and medical care we will conform to EU legislation "The Charter of Fundamental Rights of the EU", Directive 95/46/EC of the European Parliament and of the Council of 24 October 1995 on the protection of individuals with regard to the processing of personal data and on the free movement of such data", Directive 98/44/EC of the European Parliament and of the Council of 6 July 1998 on the legal protection of biotechnological inventions. Examples of those biomedical inventions are: robotics for improving lifestyle and medical care, computer aided diagnosis (CAD) tools and processes for cellular and medical research applied in cardiovascular, neuroscience and cancer.
with the support of: